People With ME/CFS Protest in Front of Department of Health and Human Services Building

Phoenix Rising
ME/CFS (Chronic Fatigue Syndrome) Forums

ME/CFS Demo May 10, 2011
Dept of Health and Human Services, Washington DC

Contact: Rivka (at) ThatTakesOvaries (dot) org
Published on May 13th, 2011 08:56 AM
On May 10, 2011, 6 individuals with ME/CFS, each sick and disabled from 9 to 21 years, demonstrated in front of the U.S. Department of Health and Human Services (HHS), 200 Independence Ave, S.W., Capitol Hill, Washington D.C. They carried with them just one sign, a 25 foot banner that read:

“Obama, Sebelius, HHS: Shame on you for abandoning 1 million sick and disabled Americans with ME/CFS and XMRV (Chronic Fatigue Syndrome and a newly discovered retrovirus). Clinical trials now!”
The representatives from the ME/CFS community were Kitty Lorenz, Karen Ravitz, Sharon Stapleton, Kat Stephens, a patient from New England, and the demo organizer, Rivka Solomon. They ranged from 21 to 70 years old and came from Connecticut, Massachusetts, North Carolina, Texas and Pennsylvania.

Around 2:15 pm, the demonstrators unfurled their banner in front of HHS’s imposingly large building. They stood by the side of the street, thinking they were on what must constitute the public sidewalk, where, in most cases, people are allowed to partake in their civil rights to protest without arrest. However, it was hard to tell where the sidewalk was, given the design and layout of HHS’s plaza. But it was a good guess, as the very traffic-y and thus noisy street, Independence Ave, was just a few steps behind the protesters.

They choose not to position themselves across the street, on the opposite side of Independence Ave. By choosing to stay on the same side of the street as the HHS building itself, they knew they were taking more of a risk, since this would attract more police attention. The police that circulate around the vicinity of HHS include the Capitol Hill Police, the Washington DC Metropolitan Police, Homeland Security and of course the security for HHS itself. (Just before they started their protest, a cluster of 12+ cops were seen across the street. Later it was learned they were there for *another* nearby demonstration regarding abortion).

The ME/CFS demonstrators began filming themselves holding the banner and reading aloud a statement focusing on the plight of people living with ME/CFS. The statement included demands — next steps they hoped the government would take.

PG

Author: Leslie Carol Botha

Author, publisher, radio talk show host and internationally recognized expert on women's hormone cycles. Social/political activist on Gardasil the HPV vaccine for adolescent girls. Co-author of "Understanding Your Mood, Mind and Hormone Cycle." Honorary advisory board member for the Foundation for the Study of Cycles and member of the Society for Menstrual Cycle Research.