Tina Tidmore with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Worldwide Patient Alliance on Holy Hormones Honey! on KRFC

March 6, 2011

Join Leslie Carol Botha when she interviews Tina Tidmore with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Worldwide Patient Alliance on Holy Hormones Honey!, March 7 from 6 to 7pm MST.

CFS, is a debilitating disease that affects millions of people in the United States. It’s characterized by profound fatigue that doesn’t improve with bed rest and can be exacerbated or re-kindled by physical or mental activity. Other symptoms associated with CFS include cognitive deficits, impaired sleep, myalgia, arthralgia, headache, gastrointestinal symptoms and tender lymph nodes. Listen to the latest research on CFS via audio stream at http://www.krfcfm.org

Topic Overview:

Tina Tidmore

Administrator with the Myalgic Encephal0myelitis/Chronic Fatigue Syndrome Worldwide Patient Alliance

Former newspaper editor and publisher, now working with patient organization called PANDORA – The Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research and Advocacy –  which started a grassroots advocacy effort through the Facebook Causes.

Tidmore became sick gradually since 2003, her health plummeted in 2006,
and she was diagnosed with ME/CFS in 2007. Today Tidmore does freelance writing and communications work mostly from her bed.

Illness:

What is ME/CFS?

How can someone tell if they have ME/CFS?
What biological abnormalities are found in ME/CFS patients?
What role does the brain have in this illness?
What role do hormones have in this illness?
What role does the immune system have in this illness?

Individual Impact:

How does ME/CFS affect a patient’s life?
What are misconceptions?
How do patients feel about virus discovery?
How do symptoms affect patients?

 

Social Impact:

How many have the illness?
Who gets the illness?

 

Illness and other Diseases:

How is ME/CFS different compared to psychological or psychiatric illnesses?
Are there similarities between ME/CFS and autism?
What is the connection between ME/CFS and Fibromyalgia?

 

Retrovirus Discovery:

What’s the likelihood that the recently-discovered retrovirus causes ME/CFS?
What is the likelihood this virus is transmitted through blood transfusions or sexually transmitted?
Is there any possible connection between vaccines and the cause or symptom severity, especially now the retrovirus has been associated with it?

 

Access to Care:

Why is it so hard for patients to find a physician that can diagnose it and treat it?
As a physician, do you see anything the government can do to improve the situation?
What kind of doctor should someone go to if they think they may have this?

Patient activity:

What is ME/CFS Worldwide Patient Alliance (MCWPA)?
How is ad content decided?
How does MCWPA raise funds?
What do patients want?
What other actions are patients taking?
Why have patients waited so long to do something?
What is planned next for MCWPA?

 

Government:

What is government history on this issue
What does government need to do now?
What can people do to help?

 

PG

Author: Leslie Carol Botha

Author, publisher, radio talk show host and internationally recognized expert on women's hormone cycles. Social/political activist on Gardasil the HPV vaccine for adolescent girls. Co-author of "Understanding Your Mood, Mind and Hormone Cycle." Honorary advisory board member for the Foundation for the Study of Cycles and member of the Society for Menstrual Cycle Research.