March 6, 2011
Join Leslie Carol Botha when she interviews Tina Tidmore with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Worldwide Patient Alliance on Holy Hormones Honey!, March 7 from 6 to 7pm MST.
CFS, is a debilitating disease that affects millions of people in the United States. It’s characterized by profound fatigue that doesn’t improve with bed rest and can be exacerbated or re-kindled by physical or mental activity. Other symptoms associated with CFS include cognitive deficits, impaired sleep, myalgia, arthralgia, headache, gastrointestinal symptoms and tender lymph nodes. Listen to the latest research on CFS via audio stream at http://www.krfcfm.org
Topic Overview:
Tina Tidmore
Administrator with the Myalgic Encephal0myelitis/Chronic Fatigue Syndrome Worldwide Patient Alliance
Former newspaper editor and publisher, now working with patient organization called PANDORA - The Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research and Advocacy - which started a grassroots advocacy effort through the Facebook Causes.
Tidmore became sick gradually since 2003, her health plummeted in 2006,
and she was diagnosed with ME/CFS in 2007. Today Tidmore does freelance writing and communications work mostly from her bed.
Illness:
What is ME/CFS?
How can someone tell if they have ME/CFS?
What biological abnormalities are found in ME/CFS patients?
What role does the brain have in this illness?
What role do hormones have in this illness?
What role does the immune system have in this illness?
Individual Impact:
How does ME/CFS affect a patient’s life?
What are misconceptions?
How do patients feel about virus discovery?
How do symptoms affect patients?
Social Impact:
How many have the illness?
Who gets the illness?
Illness and other Diseases:
How is ME/CFS different compared to psychological or psychiatric illnesses?
Are there similarities between ME/CFS and autism?
What is the connection between ME/CFS and Fibromyalgia?
Retrovirus Discovery:
What’s the likelihood that the recently-discovered retrovirus causes ME/CFS?
What is the likelihood this virus is transmitted through blood transfusions or sexually transmitted?
Is there any possible connection between vaccines and the cause or symptom severity, especially now the retrovirus has been associated with it?
Access to Care:
Why is it so hard for patients to find a physician that can diagnose it and treat it?
As a physician, do you see anything the government can do to improve the situation?
What kind of doctor should someone go to if they think they may have this?
Patient activity:
What is ME/CFS Worldwide Patient Alliance (MCWPA)?
How is ad content decided?
How does MCWPA raise funds?
What do patients want?
What other actions are patients taking?
Why have patients waited so long to do something?
What is planned next for MCWPA?
Government:
What is government history on this issue
What does government need to do now?
What can people do to help?
My name is Gary Denham. I believe I have proven that CFS/ME IS A VIRAL INFECTION as I believe i have SUCCESSFULLY infected rodents with my own infection and I believe I can show any interested researcher how to replicate the experiment.
Further, I believe that Leutenizing Hormone plays a significant role in progression of symptoms of ME/CFS and that this is why children teND to get sick around puberty (average age of child infection is 12). Again, I ran an experiment in which I chemically shut down my pituitary preduction of LH (through injection of testosterone cypionate), and then, chemically restarted it with HCG which produced full blown neurological symptoms within 15 minutes of injection.
I am very sick and tired of being so. If anybody ACCREDITED wants to experiment with me either on or OFF the books, my life cannot get much worse. I’m down to be poked and prodded if it makes sense to me. I will not subject myself to fishing expeditions, but, will undergo sensical testing.
Hello, Gary - I was just speaking with a doctor yesterday about ME/CFS. He is a very reliable resource - Dr. Michael Platt - Platt Wellness He is easy to connect with - just fill out the contact information on his site and he will call you to share information. His book is “Adrenaline Dominance - A Revolutionary Approach to Wellness.”
I strongly suggest you reach out to him.
Thanks for your comment.
Apologies that it took so long to get back to you. Having been working on the web site for the last month and have been offline.
Leslie
Hello, Linda - The radio interview is now posted on the interview with Tina. Thank you for your patience.
Leslie
linda says
I work with people with CFS/ME and would be interested in hearing this interview - is it possible you can post the link to the recorded interview?
Many thanks
Linda
Hello, Linda - I have looked in my files and did not find this interview.
I have a colleague in the UK who keeps a blessed backup of all my recordings - will email him to see if he has the recording.
Thank you for your interest.
Leslie